If you have a form of myositis and take steroids as part of your treatment, you already know how challenging this can be. Corticosteroids such as prednisone are often the first line of treatment for inflammatory myopathies, and they also come with side effects that can feel overwhelming, especially when the medication treating your muscle inflammation can itself cause muscle weakness.
The Myositis Association (TMA) is partnering with Sam to provide additional support for people navigating corticosteroid treatment. Their mission is to improve the lives of people affected by myositis, fund innovative research, and increase awareness and advocacy for myositis.
"For individuals affected by myositis – especially those who are newly diagnosed – the future feels overwhelming and scary. By collaborating with Sam and providing personalized support about steroids for TMA’s community, we are empowering families to better navigate their new normal. Symptom tracking is essential to living well with myositis, and Sam is an incredibly helpful digital tool for logging myositis journeys that involve corticosteroids and accompanying side effects.” Paula J. Eichenbrenner, MBA, CAE, TMA Executive Director
TMA will feature Sam as part of its corticosteroid education efforts on their website, in webinars, and through email communications. This partnership ensures that people in the myositis community have access to plain-language information and practical tools for managing steroid side effects.
“New resources that will be shared with our community through Sam’s novel approach range from the A-Z of steroids to the importance of movement as medicine. TMA is excited about our collaboration with Sam, especially because the information at steroidsandme.com will also prepare patients for more effective communication with their physicians. ” Paula J. Eichenbrenner,
Sam visitors with myositis have found it helpful to track their side effects over time. Sam's Journey Tracker can help you monitor changes, prepare for doctor visits, and feel more in control of your health during treatment.
If you're part of the myositis community, welcome to Sam. We're glad you're here.